Category: Personal

  • How I spent my summer, so far

    How I spent my summer, so far

    When I was diagnosed with PML my first question was “what is PML?” And by that I mean beyond what the initialism stands for (Progressive Multifocal Leukoencephalopathy). I’d never heard of it; most people haven’t, although I do hear it more and more these days in those laundry lists of potential side effects that get…

  • Today is my annHIVersary

    Today is my annHIVersary

    To tell you this story, I first must introduce you to Paul and Martin.  For much of the 90s, Paul was my wingman.  Along with Martin, we were the “three amigos” of the LA gay scene.  The three of us met in the seminary as undergraduates when we were all Conventual Franciscans studying philosophy.  Paul…

  • A journey of a thousand miles

    A journey of a thousand miles

    Chinese philosopher Lao Tzu taught that “a journey of a thousand miles begins with a single step” in his work the Tao Te Ching. Today, I am taking the first step on my new journey. I have my first appointment with an oncologist. I have a lot to learn. But this is not unfamiliar territory.…

  • Act II, Scene III

    Act II, Scene III

    I have called everything in my life since AIDS tried to kill me in 2006 my “second act.” And now, I’m beginning to see how Act II has passed through several “scenes.” Scene I was retiring from Technicolor and moving to my house in the Mountain Gate neighborhood of Palm Springs. Scene II was realizing…

  • No such thing as normal

    No such thing as normal

    People with disabilities account for 1-in-4 adults in the United States.  Think about that; it’s a massive number!  Though technically considered a “minority” group, there is nothing minor about it. People with disabilities are the largest and most diverse minority group in the country, representing all abilities, ages, races, ethnicities, genders, sexualities, religions, and socio-economic…

  • In My Life

    In My Life

    There are places I’ll rememberAll my life, though some have changed.Some forever, not for better;Some have gone and some remain. “In My Life” – The Beatles I hope you will indulge me, thoughtful reader.  Because I would like to share a very personal moment, a milestone with you.  I said goodbye to Glendale, and my…

  • Portmanteau

    Portmanteau

    As a boy, I thought Star Trek was real.  And by that I mean the original series.  Not “The Next Generation” with young Wesley Crusher, upon whom I had a crush. Crusher-crush. Nah, too easy! Before you call me a dirty old man, or something worse, remember, when we first meet Wesley, in the pilot…

  • The Stuffing Letter

    The Stuffing Letter

    I have kept a journal since I was 19.  A “journal” is like a diary, except entries are not made daily (though they can be) and it is not meant to be a record of anything:  such as, “met Ryan for coffee,” or “saw Jennifer Aniston at the Farmer’s Market.”  I use my journaling (the…

  • Rage, rage against the dying of the light

    Rage, rage against the dying of the light

    Let’s get this out of the way right at the start.  No.  I don’t know who he is.  But that is not to say I don’t remember him.  Knowing the incubation period for the virus, I can narrow it down to one guy.  I call him “white SUV guy.”  He lived in Larchmont, a trendy…

  • Asking For Help

    Asking For Help

    I got my first “powerchair” (motorized wheelchair) in 2014, seven years after I became wheelchair-bound, and it was nothing short of ecstasy.  For the seven years prior, I had grown accustomed to being restricted to a wheelchair; I wasn’t happy about it, but I made the best of it.  I lived on my own in…